DEPARTMENT OF HUMAN SERVICES

Shawnie Rechtenbaugh, Department Secretary





DEVELOPMENTAL DISABILITIES
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developmental disabilities

family support 360

Family Support 360 serves people with intellectual and developmental disabilities. This program assists participants and their families in self-directing the services they need to live as independently as possible in the community.

Vision Statement

Broadening opportunities for people with developmental disabilities across the lifespan.

Resources

Quality Improvement Materials

What is Family Support 360?

Family Support is not a single service, but rather a flexible constellation of services and supports which are customized to meet the varied and changing needs of each participant and family. A family support program recognizes and values the contribution of natural or informal supports such as extended family members, friends, neighbors, church congregations, and community organizations. In addition to utilizing natural supports, a family support program helps participants and families to access existing formalized services such as the Child Care Assistance Program, Children's Miracle Network, Energy Assistance, Children's Special Health Services, Home-Based Services, Independent Living Centers, etc.

A family support coordinator assists participants to identify and access a broad range of natural and formalized services to meet their identified needs. One of the "hats" frequently worn by the family support coordinator is that of advocate on behalf of the participant. The role of advocacy is best accomplished by someone independent of any agency or entity that might also be providing services for a participant. Otherwise, a family support coordinator might be placed in the precarious position of advocating for the desires of a participant that are in direct conflict with the desires of one's employer.

Another very essential tenet of a family support coordinator is a pool of flexible funds that can be utilized to purchase services for supports not otherwise available and to assist participants with extraordinary expenses. For example, rather than establishing a formal program to provide for home modifications, the flexible funds might be utilized to purchase the needed modifications from private contractors.

In lay terms, family support is often conveyed in the phrase "whatever it takes" to maintain and strengthen the participant's ability to remain in their own home. Families receiving family support services often comment that it allows them to "just be a family."

What are the guiding principles of Family Support 360?

Family Support 360 encourages individual choice to create a unique plan for accessing supports and services.

  • Enhancing the ability to make decisions concerning necessary, desireable, and appropriate services and supports across the lifespan.
  • Reinforcing choices to live and work in the community.
  • Building relationships and developing a role in the community.
  • Recognizing and valuing the contribution of natural or informal supports such as family members, friends, neighbors, church congregations, and community organizations.
  • Encouraging and supporting self-direction.
  • Learning from the families, participants, and professionals.
Family Support 360 is responsive to the needs of people with developmental disabilities.
  • Listening and responding respectively.
  • Assisting during crises and responding to changing needs.
  • Focusing on the needs of the entire family.
  • Advocating for the person and their family.
  • Respecting cultural preferences.
  • Providing, advising, and designing accessibile services.
  • Using public dollars efficiently.
Family Support 360 is a flexible constellation of services and support.
  • Building a budget around the needs of the person.
  • Assisting with changes in services and supports.
  • Exploring community resources and services.
  • Organizing resources in ways that are life-enhancing and meaningful.
  • Utilizing funds to purchase services or supports not otherwise available.
  • Assisting with extraordinary expenses.
Family Support 360 is progressive in the pursuit of helping people live the lives they want.
  • Researching options for services and supports.
  • Meeting needs creatively.
  • Implementing best practices.
  • Treating people equitably.
  • Sustaining Family Support 360 for the future.

Family Support 360 Local Programs

Local family support programs provide service coordination and financial assistance to participants with developmental disabilities living at home across the lifespan. Local family support programs serve approximately 40 participants. There are 38 local programs in the family support network.

The local family support coordinators assist participants in developing their individualized plans and accessing a broad range of services and supports to meet their needs. The coordinator also provides follow-along support and is available to assist during crises or when the needs of the participant or their family change. Often times, the coordinator will act as an advocate for the participant and their family reducing stress that accompanies this task.

In addition to service coordination and advocacy, participants and their families also receive financial assistance with expenses as identified in the individualized plan. These supports are centered around the entire family, not just the person with the disability. These expenses may include, but are not limited to the following:
  • Companion Care
  • Personal Care
  • Supported Employment
  • Environmental Accessibility and Adaptive Equipment
  • Vehicle Modifications
  • Respite Care
  • Nutritional Supplements

Other Available Services to maintain and strengthen a family’s ability to provide care at home

The local family support coordinator pursues other resources before the financial assistance is provided. For example, the local school district's responsibility would need to be ruled out before assistance is provided that could be their responsibility. Often times a combination of resources is used to meet the families' needs.

Family Support 360 Coordinator Contact Information

Mailing Address

Coordinator

Phone

Fiscal Agent 

Aberdeen Area Family Support Program

202 S. Main Street Ste 402

Aberdeen  SD  57402

abfamily500@gmail.com

 

Tami Leddy-Sederquist

 

605-216-3359

LifeQuest - McPherson, Brown, Marshall, Faulk, Edmunds

Black Hills Family Support Program

PO Box 218

Sturgis, SD 57785

keszlinger@bhssc.org

 

 

Kari Eszlinger

 

 

 

605-720-4853

 

BHSSC: Harding, Butte, Meade, Lawrence

Central SD Family Support Program

221 South Central, Suite 33

Pierre, SD 57501

cwagoner@bhssc.org

 

Colette Wagoner

 

605-494-3613

BHSSC: Perkins, Corson, Campbell, Walworth, Dewey, Ziebach, Stanley, Hughes, Potter

Eastern Family Support Program

3520 Gateway Lane

Sioux Falls, SD 57106

b.riedel@voa-dakotas.org

 

Brian Riedel

 

 

605-444-6200

605-444-6257

Volunteers of America: Brookings, Kingsbury, Miner, Lake, Moody, McCook, Minnehaha (Not including SF)

East Central Family Support Program

PO Box 78

Kimball, SD 57355

ecfs@midstatesd.net

Monica Konechne

605-778-6780

888-448-8651*

LifeQuest: Beadle, Buffalo, Hyde, Hand, Jerauld, Sanborn, Brule, Aurora, Davison, Hanson

Mitchell Family Support Program

PO Box 1265

Mitchell SD  57301

mitchellfs@mitchelltelecom.net

 

 

Jayme Gill

 

 

605-996-5801

800-456-0728*

LifeQuest: Beadle, Buffalo, Hyde, Hand, Jerauld, Sanborn, Brule, Aurora, Davison, Hanson

Northeast Family Support Program

PO Box 5

Webster, SD  57274

kbreske@itctel.com

 

 

Katherine Breske

 

 

605-345-2413

877-340-2413*

LifeQuest: Roberts, Grant, Hamlin, Codington, Deuel

Northeast Family Support Program #3

202 S. Main St. Suite 312

Aberdeen  SD  57402

NE3supp@gmail.com

 

 

Catherine Diede

 

 

605-262-0431

LifeQuest: Brown, Spink, Day, Clark, Codington, Hamlin

Northeast Family Support #4

202 S. Main Street, Suite 403

Aberdeen, SD 57401

Nefs403@gmail.com

Sonja Cole

605-228-2488

HACFI: Spink, Brown, Marshall, Day, Roberts, Grant, Clark, Codington, Hamlin, Deuel

Pennington County Family Support

PO Box 218

Sturgis, SD 57785

aroberson@bhssc.org

 

 

Amanda Roberson

 

 

605-720-4841

BHSSC

Sioux Falls Family Support Program #1

3520 Gateway Lane

Sioux Falls, SD 57106

c.henderson@voa-dakotas.org

Christi Henderson

605-444-6200

605-444-6238

Volunteers of America

Sioux Falls Family Support Program #2

3520 Gateway Lane

Sioux Falls, SD 57106

c.lamb@voa-dakotas.org

Connie Lamb

605-444-6200

605-444-6214

Volunteers of America

Sioux Falls Family Support Program #3

3520 Gateway Lane

Sioux Falls, SD 57106

k.julius@voa-dakotas.org

Kathy Julius

 

605-444-6200

605-444-6221

Volunteers of America

Sioux Falls Family Support Program #4

1008 W 18th St

Sioux Falls, SD 57104

shannon.jones@lifescapesd.org

 

 

 

Shannon Jones

 

 

 

605-212-5764

 

 

 

 

LifeScape

 

 

 

 

Sioux Falls Family Support Program #5

1008 W 18th St

Sioux Falls, SD 57104

travis.gallipo@lifescapesd.org

 

 

Travis Gallipo

 

 

605-553-6776

LifeScape

Sioux Falls Family Support Program #6

1008 W 18th St

Sioux Falls, SD 57104

Heidi.valer@lifescapesd.org  

 

 

Heidi Valer

 

 

605-323-7086

LifeScape

Sioux Falls Family Support Program #7

3520 Gateway Lane

Sioux Falls, SD 57106

e.kavanagh@voa-dakotas.org

 

Edie Kavanagh

 

605-444-6200

605-444-6236

Volunteers of America

Sioux Falls Family Support Program #8

1008 W 18th St

Sioux Falls, SD 57104

Ramie.Carder@lifescapesd.org  

Ramie Carder

605-951-1630

LifeScape

Southeast Family Support

PO Box 349

Scotland, SD 57059

Nikki.kavanagh@sesdac.org

Nikki Kavanagh

605-583-3060

888-816-5880

SESDAC: Yankton, Charles Mix, Douglas, Hutchinson, Bon Homme, Gregory

Southeast Family Support Program #3

PO Box 596

Harrisburg, SD 57032

Lindsey.Madsen@sesdac.org

Lindsey Madsen

605-202-0940

SESDAC: Turner, Lincoln, Yankton, Clay, Union

Southeast Family Support #4

PO Box 694

Crooks, SD 57694

Marissa.bucher@sesdac.org

Marissa Bucher

 

605-305-2658

 

SESDAC:

Minnehaha (NOT SF), Turner, Lincoln, Union, Clay, Yankton

Southeast Family Support #5

1008 W 18th St

Sioux Falls, SD 57104

raelyn.bennett@lifescapesd.org

RaeLyn Bennett

605-251-6578

LifeScape: Brookings, Lake, Moody, McCook, Minnehaha (NOT SF), Turner, Lincoln

Southeast Family Support #6

PO Box 497

Scotland, SD 57059

jfischer@midstatesd.net

Jill Fischer

605-660-0111

 

Dakota Milestones: Gregory, Charles Mix, Douglas, Hutchinson, Bon Homme, Yankton, Clay, Union, Turner, Lincoln

Southern Hills Family Support

PO Box 394

Sturgis  SD  57785

risraelson@bhssc.org

 

Becky Israelson

 

 

605-720-1954

800-473-7812*

BHSSC: Custer, Fall River, Shannon

West Central Family Support Program

 PO Box 248

Chamberlain, SD 57325

jennahieb@dakotamilestones.org

 

 

 

Jenna Hieb

 

 

 

605-680-9803

Dakota Milestones: Haakon, Hughes, Stanley, Sully, Jones, Lyman, Jackson, Mellette, Bennett, Todd, Tripp

Western #2

PO Box 218

Sturgis, SD 57785

kheumiller@bhssc.org

Kristi Heumiller

605-347-4467

ext. 1725

BHSSC: Harding, Butte, Lawrence, Meade, Pennington, Custer, Fall River, Shannon

Central Area PLANS

221 South Central Avenue Suite 33

Pierre, SD 57501

ncremer@bhssc.org

Nancy Cremer

605-224-5336

Ext. 523

800-224-5336*

 

BHSSC: Bennett, Brule, Buffalo, Corson, Campbell, Dewey, Edmunds, Faulk, Gregory, Haakon, Hand, Hughes, Hyde, Jackson, Jones, Lyman, McPherson, Mellette, Potter, Stanley, Sully, Todd, Tripp, Walworth, Ziebach

Northeast Area PLANS

202 South Main Street Suite 400

Aberdeen, SD 57401

NEFS360@gmail.com

Marsha Boyd

 

 

605-228-0369

 

 

HACFI: Beadle, Brown, Clark, Codington, Day, Deuel, Grant, Hamlin, Marshall, Roberts, Spink

Western Area PLANS

730 E. Watertown St.

Rapid City, SD 57701

tmareska@bhssc.org

 

Tiffani Mareska

 

 

 

605-394-5120

800-518-0511*

 

 

BHSSC: Butte, Custer, Fall River, Harding, Lawrence, Meade, Pennington, Perkins, Shannon

Benchmark Family Support Southeast #1

PO Box 252

Elkton, SD 57026

tbukowski@benchmarkhs.com

Teri Bukowski

605-645-4540

Benchmark Human Services

Benchmark Family Support Southeast #2

Sioux Falls, SD

1000 W. Venture Pl. #218

Sioux Falls, SD 57105

tharberts@benchmarkhs.com

Tara Harberts

605-231-7843

Benchmark Human Services

Benchmark Family Support Southeast #3

1600 Country Drive #12

Mitchell, SD 57301

abeachpattison@benchmarkhs.com

Alli Beach-Pattison

605-231-7843

Benchmark Human Services

Benchmark Family Support Central #1

PO Box 112

White Lake, SD 57383/ Sioux Falls, SD

jvaverka@benchmarkhs.com

Jason Vaverka

605-680-4169

Benchmark Human Services

Benchmark Family Support Northeast #1

Aberdeen, SD 57002

jhill@benchmarkhs.com

Jason Hill

605-633-0816

Benchmark Human Services

Benchmark Family Support East Central #1

Madison, SD

kdixon@benchmarkhs.com

Kaddie Dixon

605-633-9528

Benchmark Human Services

Benchmark Family Support West #1

Edgemont/Rapid City, SD

tkaiser@benchmarkhs.com

Tara Kaiser

605-890-2005

Benchmark Human Services

Family Support Council

Vision Statement
Broadening opportunities for people with developmental disabilities across the lifespan.

A bill was passed during the 1994 legislative session to create the Family Support Council. The Council was assigned the tasks of assisting in the design, implementation, regulation and evaluation of family support services in South Dakota. The first Council members were appointed the following July.

Their appointment to this Council makes them a voice for many families, not just their own. Council members are appointed with an attempt to maintain representation across the state. The Council continues to function through Executive Order of the Governor of South Dakota.

The Council is composed of fifteen members who are adults with developmental disabilities or family members of people with developmental disabilities. The Council continues to assist in development, implementation, and evaluation of family support services in South Dakota.

Family members of children with developmental disabilities and adults with developmental disabilities are encouraged to contact Council members to share personal experiences and what they believe is needed for family support services.

The Council meets quarterly in various locations within the state. The Council meetings are open meetings and the public is encouraged to attend. Inquires regarding Council membership, or if you wish to serve on the Council contact the Department of Human Services, Division of Developmental Disabilities at 1-800-265-9684 or by Email: Jaze.Sollars@state.sd.us

If you would like additional information about the Family Support Council, please contact Jaze Sollars at 800-265-9684 or visit its page on the S.D. Boards and Commissions Portal.

What are other available resources for people with disabilities?

Federal Departments and Agencies
National Legislators State Departments and Agencies State Legislators South Dakota Advocacy Services Other Disability Organizations PLANS Advisory Group Resources

Learning to Drive: A Guide for Parents

This link will take you to the handbook.� It is made for parents of teenagers.� It can also be helpful for people becoming drivers for the first time.

South Dakota Driver Licensing Program

This link is to the South Dakota Driver Licensing Program Manual.

QUIA Driver Education

This link is for a quiz online.� It can be used to get you ready for your driver's license test.� Questions are about the information in the South Dakota Driver's Manual.

Easter Seals Project ACTION

Easter Seals Project ACTION was originally commissioned by Congress in 1988 as a research and demonstration project to improve access to public transportation for people with disabilities. With the passage of the ADA two years later, their goals expanded to help transportation operators implement the law's transportation provisions.� Funded through a cooperative agreement with the U.S. Department of Transportation, Federal Transit Administration, Easter Seals Project ACTION promotes cooperation between the transportation industry and the disability community to increase mobility for people with disabilities under the ADA and beyond. They offer numerous resources, as well as training and technical assistance, in an effort to make the ADA work for everyone, everyday.� Almost two decades�after their creation, their goal - and their name - remains unchanged: Accessible Community Transportation In Our Nation (ACTION).

Buses and Trains for Everyone

Buses and Trains for Everyone curriculum is developed with support from Easter Seals Project ACTION to teach concepts and skills needed to use public transportation. Targeted to children grades K-8, Buses and Trains for Everyone is now available to schools across the country. This curriculum is targeted to students with disabilities but can be used by anyone learning to use public transportation. Transportation is key to independence. Buses and Trains for Everyone teaches safety, travel etiquette, manners, and life and problem-solving skills. The curriculum includes alternative assessment standards for children with severe disabilities.

Title XIX Non-Emergency Medical Transportation Program

This link provides information about the Title XIX Non-Emergency Medical Transportation Program.� This program provides assistance for non-emergency medical transportation needs of eligible TitleXIX Medicaid recipients.

SSA Definitions

SSA Procedure for Other Transportation Situations

Fact:� Individuals receiving Supplemental Security Income (SSI) or Social Security Disability Insurance (SSDI) may have impairment-related items that you require in order to work.� This is called an Impairment Related Work Expense or IRWE.� The purpose of the IRWE work incentive is to enable you to recover some of your costs of expenses needed to support your work incurred as a result of your disability.� In some cases, transportation may be an impairment Related Work Expense.�The following two links provide information from the Social Security Administration (SSA) about transportation.� If you have questions about this, please contact the Work Incentive Planning and Assistance (WIPA) Program at 1-800-224-5336.

Housing
Please follow the link for a new resource from the DD Council.� This booklet, called "Explore the Possibilities - Home Ownership for People with Limited Incomes in South Dakota," describes options for owning a home in South Dakota.

http://dhs.sd.gov/ddc/housing.aspx

 

Family Strengthening

More and more people with developmental disabilities are getting married and raising a family.� The group has searched for resources to support people with this choice.� In addition, the group discussed the importance of providing information to people with disabilities about healthy relationships.� Listed below are links to several helpful resources in these areas.� Each of the Coordinators also has resources that they can give to participants of the Family Support 360 Program.

The following link provides a resource developed by the Wisconsin Council on Developmental Disabilities http://www.wcdd.org/Publications/cultivating_competence.pdf .� This document features 11 states that offer supportive parenting programs.� It gives a brief history of�each program, description of�the program, what type of staff is involved and�the funding source.� This document may be helpful for service providers and state agencies looking for models to develop a program within their area.

A new National Center for Parents with Disabilities and their Families has been established under Through the Looking Glass, a non-profit organization founded in 1982.� The Center will oversee several national research studies concerning parents with disabilities and their families, as well as provide consultations, trainings and publications to parents, family members and professionals.� The new Center will focus its research and resource activities on four critical areas that impact parents with disabilities: custody, family roles and personal assistance; paratransit and intervention with parents with cognitive disabilities and their children.� For more information about the Center and Through the Looking Glass visit the organization’s website www.lookingglass.org .

The manual “Supporting Families When Parents Have Intellectual Disabilities� http://165.234.216.166/prod/pub/pdf/Supporting_Families_w_ID_Manual.pdf was created by the North Dakota Center for Persons with Disabilities.� The manual offers practical suggestions and resources that will hopefully make it easier for providers to step out of traditional roles and reach out to parents with disabilities. It is also hoped that the use of these strategies will lead to the development of integrated services. It is believed that appropriate support will allow families with parents who have intellectual disabilities to thrive and flourish and thus prove the case for continued support. It is also believed that the strategies will benefit many other families, who may not have intellectual disabilities but struggle with parenting.

Supported Employment

The Supported Employment Sub-committee has discussed current activities in Sioux Falls and Aberdeen involving�Project Search - http://www.cincinnatichildrens.org/svc/alpha/p/search/default.htm .� Other discussion includes the Freedom to Work http://www.sd-ccd.org/ftw/ grant activities with�Career Development Teams�and the need for a list or booklet of resources for families and people with disabilities on the topic of supported employment and self-employment.� An initial list of resources has been compiled and will be updated as new information is located. Employment resources

Preparing for an Emergency

The workgroup was able to learn about some resources for preparing for emergency and would like to provide the following links to those resources.

Follow this link to the Administration on Developmental Disabilities website for resources from a variety of sources.� All of the resources on this site are specifically for people with disabilities. Disaster Preparedness

Follow this link to the State of South Dakota’s emergency preparedness website.� The website includes resources for different types of disasters, different types of locations, and kids, and a wizard for creating a plan and a kit in the event of an emergency or disaster. http://www.breadysd.com/

The Disability Preparedness Resource Center website provides practical information on how people with and without disabilities can prepare for an emergency. It also provides information for family members of, and service providers to, people with disabilities. In addition, the site includes information for emergency planners and first responders to help them to better prepare for serving persons with disabilities.� Check out this website at: http://www.disabilitypreparedness.gov/

What is the Family Support Grievance Process?

If families have questions, comments, or concerns about services they are receiving, they are encouraged to contact their Family Support Coordinator but can also contact the Division of Developmental Disabilities, c/o 500 E. Capitol, Pierre, SD 57501. Toll Free 1-800-265-9684, or (605) 773-3438.

46:11:09:24 . Right of an appeal . A participant or a participant's parent or guardian may appeal ineligibility, termination, or reduction of services by following the process in law. The participant will be provided with information on how to obtain assistance from an employee of the state's designated protection and advocacy system. When reduction or termination of services are being appealed, services cannot be reduced or terminated until a decision is reached after a hearing. Access the rule online for more information.

46:11:10:09. Appeal of ineligibility of statewide Family Support services . A participant or particpant's parent or court-appointed guardian may appeal the program manager's decision regarding ineligibility of services to the division by requesting an appeal (contact information provided above). For complete details on the appeal process, access the rule online .

WHAT IS ELECTRONIC VISIT VERIFICATION (EVV)?

Section 12006(a) of the 21st Century Cures Act mandates that states implement EVV for all Medicaid personal care services (PCS) that require an in-home visit by a provider. This applies to PCS provided within the Family Support 360 waiver program.�At this time the state is working with its service coordination system vendor (FOCoS Innovations) to develop EVV capabilities and procedures within the FS360 program. Currently, we are working to issue a survey to PSC providers and participants to establish a better understanding of the program's current and future EVV capabilities. States must require EVV use for all Family Support 360-funded PCS by January 1, 2020. Otherwise, the state is subject to incremental FMAP reductions up to 1% unless the state has both made a "good faith effort" to comply and has encountered "unavoidable delays." Please see below for a list of EVV resources to assist states in complying with CURES Act requirements: EVV Presentation - Part 1 - Part2